Friday, June 26, 2009
Update on the little one
Friday, June 26, 2009 | Original Musings by
Jen
Hi Family/Friends;
You're probably looking for an update, but there's not much to share other than our plan of attack.
A little background to refresh your memory, last November, blood in the urine happened with bebe(think color of koolaid), and it was quite a bit worse. We went thru CT scans, xrays, and ultrasound and blood and urine tests each time we went to hospital. Her symptoms only lasted about 20 hours. The testing was done over a 3 week period. This Monday we were back in the ER for the same problem, but the symptoms only lasted about 5 hours and were less severe.
We've already been to several doctors this week, and luckily they all agree with the approach of the Kidney Specialist, which is outlined below.
Wednesday, when we were at the pediatrician there was still signs of protein in her urine, with a score of 2 positive. Today at the kidney specialist, of course it was gone. We have the most incredible doctor there, and since this has happened twice, they are going to move forward with a plan to see why this is happening. So, here is the plan to diagnose:
We first have to collect 24 hours of urine in a jug and take it back to them on Monday. As Bebe said, "that won't be lemonade in the fridge!" (ewwww). At that time, we have to also go get lab work done and they will use those blood tests to measure her kidney functions and compare that to the testing we had done last November.
Then in about 3 weeks we will get another ultra-sound to see if the inflammation of her bladder and kidneys has gone down any. The CT scan from Monday was negative for stones, but they will take another one the same day as the ultrasound to see if there are any changes, and also compare that ultra-sound and CT scans to the ones from last November.
After all of that, if there is still no clear reason for her problems, then we will do a biopsy of the kidney.
In the meantime, there's a few minor dietary and other changes to our routine, but it's for the most part, business as usual for her.
Thanks for all your emails and calls with concerns.
Many thanks,
Us
You're probably looking for an update, but there's not much to share other than our plan of attack.
A little background to refresh your memory, last November, blood in the urine happened with bebe(think color of koolaid), and it was quite a bit worse. We went thru CT scans, xrays, and ultrasound and blood and urine tests each time we went to hospital. Her symptoms only lasted about 20 hours. The testing was done over a 3 week period. This Monday we were back in the ER for the same problem, but the symptoms only lasted about 5 hours and were less severe.
We've already been to several doctors this week, and luckily they all agree with the approach of the Kidney Specialist, which is outlined below.
Wednesday, when we were at the pediatrician there was still signs of protein in her urine, with a score of 2 positive. Today at the kidney specialist, of course it was gone. We have the most incredible doctor there, and since this has happened twice, they are going to move forward with a plan to see why this is happening. So, here is the plan to diagnose:
We first have to collect 24 hours of urine in a jug and take it back to them on Monday. As Bebe said, "that won't be lemonade in the fridge!" (ewwww). At that time, we have to also go get lab work done and they will use those blood tests to measure her kidney functions and compare that to the testing we had done last November.
Then in about 3 weeks we will get another ultra-sound to see if the inflammation of her bladder and kidneys has gone down any. The CT scan from Monday was negative for stones, but they will take another one the same day as the ultrasound to see if there are any changes, and also compare that ultra-sound and CT scans to the ones from last November.
After all of that, if there is still no clear reason for her problems, then we will do a biopsy of the kidney.
In the meantime, there's a few minor dietary and other changes to our routine, but it's for the most part, business as usual for her.
Thanks for all your emails and calls with concerns.
Many thanks,
Us
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